Welcome! The goal of this blog is to start a conversation about the value of potential and of setting positive expectations in health care, particularly for children born with health conditions. They are surviving, but are they thriving? Can we redefine what we mean by “patient outcomes”? Join the conversation!
Every spring, I look forward to two things: the snow melting, and the NCAA basketball championship tournament. I watch very little TV, but for those few crazy weeks, I am glued to every March Madness game I can fit into my already bleary-eyed schedule. My alma mater is nearly always a contender, but that is only partially the draw. In truth, not unlike millions of other fans, I really watch in the hope of seeing a “Cinderella Story” emerge. There are numerous essays and theories about the psychology behind fandom and the desire to root for an underdog, and Continue reading
I admit it, I like words. I like clever words, funny words, word play. And I also like meaningful words. I believe that carefully chosen words, when backed up by corresponding thoughts, sentiments, and genuine actions that make those words ring true, make all the difference. I also have found that the messaging and nomenclature we use in medicine can have unintended consequences when heard by patients, families, teachers, or community members. For instance, in my field, I often see children with a murmur, which is quite frequently a benign or innocent, normal finding of hearing the blood as it flows by in a growing child’s chest. Undoing the amount of angst generated by that word “murmur” could keep me in business a long time; not only does the word have an evil or sinister sound to it (remember “redrum” from The Shining?), but Continue reading